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Walk with Charlie

Since its inception not long ago, Team Charlie has been very active, supporting the Batten Disease Support & Research Association (BDSRA) with over $20,000 in funding, donating over $75,000 to the Rush University Medical Center N-of-1 fund, sponsoring the 2024 NCL (Batten Disease) International Research Conference, and delivering holiday gifts to children with rare disease at Rush University Medical Center. All of this has helped spread awareness for all pediatric rare diseases like Batten Disease. We are hopeful you will join us again in 2025!

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