Walk with Charlie
Since its inception not long ago, Team Charlie has been very active, supporting the Batten Disease Support & Research Association (BDSRA) with over $20,000 in funding, donating over $75,000 to the Rush University Medical Center N-of-1 fund, sponsoring the 2024 NCL (Batten Disease) International Research Conference, and delivering holiday gifts to children with rare disease at Rush University Medical Center. All of this has helped spread awareness for all pediatric rare diseases like Batten Disease. We are hopeful you will join us again in 2025!
Frequently asked questions
Is my donation secure?
Do I get a receipt?
How is my personal data handled?
Rush University Medical Center is a 501(c)3 tax-exempt organization, and your donation is tax deductible within the guidelines of U.S. law. Please keep your receipt as your official record. We'll email it to you upon successful completion of your donation.